Wednesday, November 13, 2013

Latest News

I've been terrible at updating lately, but OIT world has been reasonably uneventful.  I'm still a ball of nerves more often than not, but such is my personality.  At Sean's last appointment two weeks ago, he went from 50mg of peanut in liquid form to 50mg of peanut in flour form.  The flour is in capsules that we open and sprinkle in some applesauce and feed him twice daily.  The dose was technically the same, but Dr. M. says they do that intentionally to be extra safe due to possible variability when switching from one dosage form to the other.  I appreciated the extra time at 50mg because he didn't seem to tolerate it the best.  He did okay, but he did seem to have more random redness, red ears, extra mucus, etc.  He has this pesky cough that will not go away.  It's stressing me out to no end.  If I'm not convinced he's developing asthma, I'm convinced that all three children have pertussis.  I am a nervous ball of nerves.

And on that note, tomorrow we increase to 100mg!  That is officially 1/6 of one peanut.  It is an amount large enough for me to visualize, and I simply can not believe it.  If we continue at this current pace, he could potentially eat a full peanut around the beginning of the new year.  I am just astounded.  I might have to pull out my good camera to take a picture of him in the office for the first time he holds a real peanut in his mouth.  I wonder if the speedlite would be too much to bring along?

This last comment is entirely off-topic, but since I've eluded to my own health concerns, I figured I would post an update on that as well.  I'm still awaiting the results of many, many tests from several weeks back when I had 29 vials of blood drawn and also a pretty intensive urine test where I had to collect samples of my first-morning urine three days in a row and mail them away.  I feel it's sort of a long-shot at this point, as my symptoms are highly typical of multiple sclerosis and as a 30-year-old white woman, I fit that demographic perfectly.  But many of those tests were for Lyme disease and other tick-borne illnesses.  In April, a few weeks before these symptoms began, I found a tick on myself when we were visiting a wooded area of land we were considering buying.  Actually, there were a lot of ticks there and we visited the place on multiple occasions.  However, I've undergone pretty extensive antibiotic treatment, and have only seen minimal improvements.  I'm going a week from today for a repeat of my MRIs of my brain and cervical spine, hopefully with contrast this time.  The ones I had in June without contrast came back normal.  I also had my doctor put in a referral with a different neurologist who specializes in MS.  I figure if there is a very good possibility that MS is my future, I want someone on the cutting edge of research who can manage my condition and help me live as healthy of a life as possible.  I want nothing more than for this to all just go away and have been a bad nightmare, but since it has been going on for over six months now, I'm pretty certain it's not just going to magically resolve itself.  I need answers and I need a plan.  I will take any well-wishes you can send my way.